And the Guessing Game Continues

by Ginger on August 5, 2014

in I'm a Disaster

I haven’t really talked about it much on my blog, but since early May I’ve been dealing with this annoying abdominal pain thing. Not a stomach ache, no, a physical, pinpoint, feels like a bruise almost kind of abdominal pain. At first, they thought it was my appendix–the urgent care doc sent me to the ER saying, “You’ll probably be having surgery tonight.” Turns out, nope, not my appendix. Not my gallbladder, not my kidneys, not ovarian cysts, not my liver, not my intestines, not anything that anyone can place. Since May, I’ve had this weird abdominal pain plus a low grade fever that pops up off and on, and none of the myriad tests or blood work I’ve had done have given me any answers. At one point, my doctor’s response was “Huh. That’s weird.” So, you know, that’s been helpful.
It’s…beyond annoying.(On the plus(?) side, we’ve pretty much hit our out of pocket maximum on health insurance this year hahahahaohgod). Anyway, the mystery continues, and all things being equal, it’s not that big a deal. I try to avoid things with waistbands (because OW. Thank goodness for maxi skirts man.), and when that fever pops up, I get pretty fatigued, but other than that, it’s not the end of the world. We’re still trying to figure out what it is, but it doesn’t *really* impede my day to day life too much. It has given me a really interesting look at the medical community though, that I haven’t really had before. I’ve been to 5 or 6 different doctors/specialists about this over the last 3 months, and it’s been interesting to me to see how different doctors treat the same issue. Some have glossed over something that another thought was super important. Some have been curious and determined to get to the bottom of this while others have been more dismissive. I’ll say that the ER doctor I had was THE most dismissive doctor I’ve had in a long time, in a way that wasn’t explained by how busy he was. (When the CT came back and it wasn’t my appendix, he basically told me that maybe it was a pulled muscle, kthanxbai. Uh sure dude, because a pulled muscle explains all my symptoms & the kind of pain I was having). And here’s the thing that’s become clear–for all we know about the human body, we don’t know everything. Doctors don’t know everything. If something isn’t a clear cut case of whatever, then it’s often about a process of elimination and/or guessing correctly. Which is…kind of frustrating when you’re the one on the other end of the diagnosis.

clara August 5, 2014 at 8:32 pm

Unexplained health stuff is SO FRUSTRATING. I feel for you.

I know that process of elimination thing. I’ve been having tests and stuff for a random digestive condition that finally worried me enough to get me to a doctor (it takes a lot, because I don’t have a doctor so I have to go to a walk-in clinic all the time, which can take hours) – so I go in, he asks a few questions, orders a test, I go back a week later, oh the tests were fine, but you’re still feeling off, how about THESE tests.. like just run them all. RUN THEM ALL and let’s save us all a bunch of minutes, shall we? Except I guess when the government is paying for the tests we are cautious about them. Maybe. I don’t know.


Hope you get some kind of answer soon. 🙂

Cloud August 6, 2014 at 10:25 am

Oh, this is rough. Have you been thoroughly tested for infections? Post-kids I’ve had a couple of bladder infections that I did not recognize. My doctor tells me that pregnancy and childbirth can sort of reroute some nerves so that usual symptoms do not appear. The last one, the only symptom I had for about a month was fatigue. I was stumped. I’d even seen my doctor and gotten tested for a thyroid issue. And then I started getting a frequent urge to pee. I went in, said “I think I have a bladder infection,” the tests proved me right, and after ONE DAY of antibiotics, I was feeling great again.

Obviously, I am not a doctor… but it might be something to check if they haven’t already. The doctor who treated that last one was sure I was wrong until the lab results came back!

april August 20, 2014 at 5:14 am

When I was in college I had a battery of tests to try to explain why I kept getting bad UTIs – barium drinking, CTs MRIs, ultrasounds … and they never figured it out. I will always remember sitting half collapsed in the shower with no ability to pull myself out because of the cleanse stuff they made me take and I’m all “nope, I’ll go with the unexplained instead.” Never got an answer, it just ultimately went away. I have a similar issue with my headaches, although I’m not willing at this stage in my life to start having 1,871 tests done.

I hope you get answers for all your specialists, or at least it goes away on its own.

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